According to the Social Security Administration, the date that I "allegedly" became disabled is July 1, 2016. Well, on my second application anyways.
I had a meeting this morning at SSA where they reviewed my application and asked questions to amend it, so it would make the most sense. Like, why did I go back to work full time after I filed (and was denied) Social Security Disability Benefits in 2014? Well, the government declared I wasn't disabled, and since I "had another hand" I could work in a different field. So I tried. I tried and it didn't quite work out. So in July of 2016 it became evident that I couldn't work full time anymore.
This particular interview was just about my work history and what it is exactly that I do. When I asked about the medical stuff, my case worker said that it would all be reviewed in the next 30 - 60 days, and that they would mail me a letter of determination. She said it can take as long as 6 months if they have a hard time collecting medical records or verifying my employment. I completed all the information online, but there really wasn't a place for me to explain what it is like to live with Ehlers Danlos. All I can put down are the symptoms: chronic dislocations, hypermobility of my joints, fibromyalgic pain, chronic fatigue... But that isn't what living with this is like.
It's waking up every morning and doing a quick assessment to see what may have slipped out of place while I slept, and figuring out how to pop it back before pain registers. Its having to think about every step I take - willing my body to stay put together, concentrating with each step "ankles in, knees in, don't hyper extend, don't roll." Lather, rinse, repeat. It's looking at a basket of laundry and having to guess how much it weighs, and how likely it will be to sublux my wrist and fingers just by picking it up. It's tensing up every time I am near a dog who jumps up, or has a tail or body right at knee level - even when it's my own dog. It's having to explain to nosey clients, cashiers, complete fucking strangers on the street why I have ring splints all over my fingers, and why my hand looks kinda funny. It's having to make sure I don't wack an already broken fused wrist on tables, walls, chairs, doorways because my brain still registers that hand as functional and I literally forget that I can't bend it out of the way and I'm left not only feeling pain, but feeling stupid for not knowing better. Its waking up with tendonitis in my right hand/wrist and not knowing if today is the day that my other hand is going to fall off... That I will no longer be able to type, to drive, to cut my own fucking food...
So I'm a little frustrated today. With the process. With my body. With the unknown variable of what my body will do next to fail me. I never know what is coming, and that is really scary and frustrating sometimes.
May is Ehlers Danlos awareness month... Yay?
I just feel very small and alone in this moment. I'm running out of options and I'm trying to figure out how to provide for myself and my family. It's possible I may not qualify for anything because I'm still married, and that sucks too.
-----------
On a different note, but also somewhat frustrating... I made a couple more fluid paintings yesterday. They were both quite interesting to me, and apparently they gained the attention of my mother. She knows the process. She knows they take weeks to dry. So why she felt compelled to fucking touch one of them and drag her finger down the middle of it is beyond me. It wasn't just a little smudge in the corner... She dragged her finger across it. She admitted to me when I got back from my appointment that she couldn't help herself and she "touched it because it was so pretty..." but it's wet fucking paint... I resisted the urge to snap at her to keep her fingers out of my creative processes, that she had no right to touch it, and she does NOT have permission to meddle in things concerning me. Those thoughts raced through my mind... But I looked at her face, her body language - she looked genuinely sad and embarrassed and I told her I was a little annoyed, but perhaps she should just refrain from touching the canvases without asking first. She said that was fair... and that she was expecting me to be mad.
"Well, you did just single handedly ruin my budding art career, but I'm sure I'll figure something else out since it's now over forever and I'm never going to make another one of these things ever again..."
I laughed it off and she stopped holding her breath. I think she was expecting a similar explosion to the ones I have been dishing out to my father lately.
Not today, Mom. I'm too tired.
Showing posts with label depression. Show all posts
Showing posts with label depression. Show all posts
Friday, May 4, 2018
Tuesday, April 28, 2015
Next Up...
Jaw.
I've officially reached my tolerance threshold for my jaw, so that is the next major joint to be looked at. I've been in contact with 2 tmj dysfunction specialists and go in May 11th to get the scoop as to what the hell is going on in there.
My hope for a year without issue will not be happening.
I've officially reached my tolerance threshold for my jaw, so that is the next major joint to be looked at. I've been in contact with 2 tmj dysfunction specialists and go in May 11th to get the scoop as to what the hell is going on in there.
My hope for a year without issue will not be happening.
Wednesday, March 5, 2014
Here's the Skinny...
Okay, I think I have my stuff together enough to talk about what happened.
Saturday February 22nd at 5:10pm I got a frantic call from my friend J* (names changed to protect anyone who cares to be protected). He says he can't get ahold of his roommate, Joe, and asks if I can pop over to the house to check in on him. I say no problem, thinking it was no biggy and he was probably asleep on the couch or his phone was broken or something. I drove over, thinking it would be a quick trip.
J* was on the phone with me when I pulled up. Before I pounded on the door, he said "Mer, this could be really bad... Make sure you make your presence known as you go in the house... There are guns in the house." You'd think I would have hesitated or thought differently or whatever, but I just did the usual Meredith "Dude, no worries, it'll be fine!" And pounded on the door.
No answer.
Went to the back door and pounded.
No answer.
I got the spare key out and opened the back door, yelling for Joe (the roommate). No response, but I could hear the dog going ape shit further back in the house. I walked slowly, continuously calling for Joe. No response. I came around the corner.
And that's when I saw him. Joe was propped up comfortably. Almost casual looking... Except that half of his face was missing. He had killed himself with a shotgun and it was a pretty brutal scene. I was still on the phone with J* when I found him, and to hear the anguish in his voice as I told him his best friend was gone... It broke my heart.
In that moment, I realized that nothing would ever be the same. I walked back into the kitchen and started to make a list. I wrote down the address as I knew I wouldn't be able to remember it off the top of my head. I also wrote "911" at the top, as I knew I had to call them too. Thing is... I was so disoriented I wrote 919... But I quickly crossed it off and wrote it correctly. Police were called at 5:36pm.
The next several hours were a blur. The police had me wait in my car, asking me questions I didn't know the answers to. I had to wait the entire time as I agreed to take the animals out of the house (J* was on vacation, the animals couldn't be left in the house). So I stayed. The entire time. The Medical Examiner finally showed up and did their investigation. After Joe was removed, I called D* to tell her the horrific news... and to ask for her help. I knew I was just about maxed out on my emotional stability, and catching cats was going to be the end of me. I went back into the house to assess the damage... I had asked the ME to pick up as much of the brain matter off the floor as they could. They said they would, but I wanted to make sure. They did a decent job removing the chunks, but it isn't their job to clean. I just wanted to immediately start cleaning, but I just stood there and stared at where Joe had been. Marveled at the splatter pattern. I knew it was out of my capability (Blood born pathogens and all).
D* really helped me keep it together. She's pretty freaking amazing.
So now here we are in present day. I'm trying so hard not to let it bother me. I've been counselor to many people about the incident, but I've lost J*. He's hurting so much and I can feel it. I reached out to him and he warned me that he was going to lose interest in everything, including me. I literally sobbed and begged him not to cut me out... In a later conversation, he said that he was avoiding conversations and people that remind him of Joe. Unfortunately I am sort of standing right in the middle of that shit storm in his mind. I told him that I would stand as far back as he needed me to. He said he would let me know. He's moving to AZ soon and then he'll be gone forever. And all I'll have left of our friendship is the memory of seeing his best friend blown to smithereens... and knowing that seeing and speaking to me causes him pain.
It sucks.
SO. To my dearly beloved friends who keep tabs on me via this blog... Please do not take my standoffishness personally. You all know that I will give my life for the people I love... For my friends. I took a bullet that day, guys. I gave up a piece of me that I know I will never get back. I don't regret it. I'm glad it was me. I know we all say we would do anything for our friends.
I've proved that I would.
I'm just reassessing things over here a little. Figuring out what my boundaries are. I'll be back up for air soon...
Saturday February 22nd at 5:10pm I got a frantic call from my friend J* (names changed to protect anyone who cares to be protected). He says he can't get ahold of his roommate, Joe, and asks if I can pop over to the house to check in on him. I say no problem, thinking it was no biggy and he was probably asleep on the couch or his phone was broken or something. I drove over, thinking it would be a quick trip.
J* was on the phone with me when I pulled up. Before I pounded on the door, he said "Mer, this could be really bad... Make sure you make your presence known as you go in the house... There are guns in the house." You'd think I would have hesitated or thought differently or whatever, but I just did the usual Meredith "Dude, no worries, it'll be fine!" And pounded on the door.
No answer.
Went to the back door and pounded.
No answer.
I got the spare key out and opened the back door, yelling for Joe (the roommate). No response, but I could hear the dog going ape shit further back in the house. I walked slowly, continuously calling for Joe. No response. I came around the corner.
And that's when I saw him. Joe was propped up comfortably. Almost casual looking... Except that half of his face was missing. He had killed himself with a shotgun and it was a pretty brutal scene. I was still on the phone with J* when I found him, and to hear the anguish in his voice as I told him his best friend was gone... It broke my heart.
In that moment, I realized that nothing would ever be the same. I walked back into the kitchen and started to make a list. I wrote down the address as I knew I wouldn't be able to remember it off the top of my head. I also wrote "911" at the top, as I knew I had to call them too. Thing is... I was so disoriented I wrote 919... But I quickly crossed it off and wrote it correctly. Police were called at 5:36pm.
The next several hours were a blur. The police had me wait in my car, asking me questions I didn't know the answers to. I had to wait the entire time as I agreed to take the animals out of the house (J* was on vacation, the animals couldn't be left in the house). So I stayed. The entire time. The Medical Examiner finally showed up and did their investigation. After Joe was removed, I called D* to tell her the horrific news... and to ask for her help. I knew I was just about maxed out on my emotional stability, and catching cats was going to be the end of me. I went back into the house to assess the damage... I had asked the ME to pick up as much of the brain matter off the floor as they could. They said they would, but I wanted to make sure. They did a decent job removing the chunks, but it isn't their job to clean. I just wanted to immediately start cleaning, but I just stood there and stared at where Joe had been. Marveled at the splatter pattern. I knew it was out of my capability (Blood born pathogens and all).
D* really helped me keep it together. She's pretty freaking amazing.
So now here we are in present day. I'm trying so hard not to let it bother me. I've been counselor to many people about the incident, but I've lost J*. He's hurting so much and I can feel it. I reached out to him and he warned me that he was going to lose interest in everything, including me. I literally sobbed and begged him not to cut me out... In a later conversation, he said that he was avoiding conversations and people that remind him of Joe. Unfortunately I am sort of standing right in the middle of that shit storm in his mind. I told him that I would stand as far back as he needed me to. He said he would let me know. He's moving to AZ soon and then he'll be gone forever. And all I'll have left of our friendship is the memory of seeing his best friend blown to smithereens... and knowing that seeing and speaking to me causes him pain.
It sucks.
SO. To my dearly beloved friends who keep tabs on me via this blog... Please do not take my standoffishness personally. You all know that I will give my life for the people I love... For my friends. I took a bullet that day, guys. I gave up a piece of me that I know I will never get back. I don't regret it. I'm glad it was me. I know we all say we would do anything for our friends.
I've proved that I would.
I'm just reassessing things over here a little. Figuring out what my boundaries are. I'll be back up for air soon...
Thursday, January 9, 2014
Happy New Year
Trying something a little different... a video blog entry!!
Yeah, I couldn't figure out how to imbed my video...
Wow. My hair is getting really long. Now you get to see my face and hear my voice for once. :)
Yeah, I couldn't figure out how to imbed my video...
Wow. My hair is getting really long. Now you get to see my face and hear my voice for once. :)
Saturday, August 3, 2013
I Dreamed A Dream...
I love this version. Haven't listened to it in a really long time. The meaning is so different now... living with a chronic illness that slowly takes away everything you love about life.
"I had a dream my life would be... So different from this hell I'm living..."
Its a high pain, low morale kind of day.
Then, on YouTube, while sifting through some of my favorite singers, I come across this gem:
Ok, first of all, Brian Stokes Mitchell is my favorite baritone (sorry Dad...) and this song really moved me to remember the bigger picture. Plus epic crescendo's always make my hair stand on end. In a good way.
Speaking of epic crescendo's, this one gets me every time too:
My favorite tenor of all time, Luciano Pavarotti. The final stance when he's singing guts out? He's saying "Vincero! Vincero! Vincero!" which in Italian sounds like "vini-cello." Translation?
I will be victorious.
I hear you universe... I hear you. Vincero!
Wednesday, May 8, 2013
One of THOSE Days
You know the ones... Where it feels like you can't do anything right and the world knows it? That you just can't quite get a handle on what exactly you're supposed to be doing at any given moment? I'm having one of those days today. And it's not because I don't know what I'm supposed to be doing - I know exactly what I should be doing. I even have a prioritized "to do" list!
I just don't want to. Any of it.
I just want to shrug off all my responsibilities and head back up north, waving my middle finger as I go. Not helping with ANYTHING, just dumping everything at everyone else's feet and saying "here, you deal with all this - I'm done for now. Oh, you don't know how to take care of this? Well guess what, I didn't either until you initially dumped it at MY feet and asked me to take care of it. Did I bitch and complain? NO. I made some phone calls, asked some people, and FIGURED SHIT OUT without whining and complaining the whole freaking time. You know why? BECAUSE THAT'S WHAT ADULTS DO. No one is going to hand you things on a silver platter, that just isn't realistic. Sometimes you have to work hard and figure things out all on your own. Here, take all this and give it a try." (shove shove shove)
Yeah... It's one of those days. I should go outside and sit in the sun for a bit. Get my Vitamin D on and just soak it up.
Can you tell I hurt my wrist this morning? I did. Totally got bashed while trying to get a temper tantrum induced toddler dressed. It hurt. A lot. Got my wheels turning that I'm not sure how much of this I'm expected to actually take. I'm not feeling very strong right now. Quite the opposite. I've feeling exceptionally fragile and vulnerable. So I'm putting up my normal front when things are spiraling out of control... "Everything is just fine and I'm happy to just be alive!" It's a front... I'm losing control over here...
I want bacon... <3
I just don't want to. Any of it.
I just want to shrug off all my responsibilities and head back up north, waving my middle finger as I go. Not helping with ANYTHING, just dumping everything at everyone else's feet and saying "here, you deal with all this - I'm done for now. Oh, you don't know how to take care of this? Well guess what, I didn't either until you initially dumped it at MY feet and asked me to take care of it. Did I bitch and complain? NO. I made some phone calls, asked some people, and FIGURED SHIT OUT without whining and complaining the whole freaking time. You know why? BECAUSE THAT'S WHAT ADULTS DO. No one is going to hand you things on a silver platter, that just isn't realistic. Sometimes you have to work hard and figure things out all on your own. Here, take all this and give it a try." (shove shove shove)
Yeah... It's one of those days. I should go outside and sit in the sun for a bit. Get my Vitamin D on and just soak it up.
Can you tell I hurt my wrist this morning? I did. Totally got bashed while trying to get a temper tantrum induced toddler dressed. It hurt. A lot. Got my wheels turning that I'm not sure how much of this I'm expected to actually take. I'm not feeling very strong right now. Quite the opposite. I've feeling exceptionally fragile and vulnerable. So I'm putting up my normal front when things are spiraling out of control... "Everything is just fine and I'm happy to just be alive!" It's a front... I'm losing control over here...
I want bacon... <3
Labels:
anger,
asking for help,
bacon,
depression,
disability,
disappointment,
feeling alone,
frustrated,
insecurity,
pain,
rambling,
responsibility,
scared,
sick,
somethings gotta give,
tired
Monday, April 15, 2013
Angry...
I've been in a pretty piss-poor mood lately. Mostly due to money woes, but also other things getting on my nerves. And in a time when words fail me, music comes to my aid.
I know I've been on a Mumford & Sons kick lately, but another song has me completely enraptured. Mostly because the sheer frustration/anger/fury is so passionately flung from their lips and instruments. I just want to crank up the volume, throw back my head and scream...
Broken Crown
Touch my mouth and hold my tongue
I'll never be your chosen one
I'll be home, safe and tucked away
You can't tempt me if I don't see the day
The pull on my flesh was just too strong
It stifled the choice and the air in my lungs
Better not to breathe than to breathe a lie
'Cause when I open my body I breathe a lie
I will not speak of your sin
There was a way out for him
The mirror shows not
Your values are all shot
But oh, my heart was flawed
I knew my weakness
So hold my hand
Consign me not to darkness
So crawl on my belly 'til the sun goes down
I'll never wear your broken crown
I took the road and I fucked it all away
Now in this twilight how dare you speak of grace
So crawl on my belly 'til the sun goes down
I'll never wear your broken crown
I took the road and I fucked it all away
Now in this twilight how dare you speak of grace
So crawl on my belly 'til the sun goes down
I'll never wear your broken crown
I can take the road and I can fuck it all away
But in this twilight our choices seal our fate
This song speaks to me. I've made "bad" choices, I've sinned, my values are all shot... I took the road and I fucked it all away.
Not just the lyrics, but the instrumental is amazing as well. Such an obvious outpouring of hurt and anger...
I know I've been on a Mumford & Sons kick lately, but another song has me completely enraptured. Mostly because the sheer frustration/anger/fury is so passionately flung from their lips and instruments. I just want to crank up the volume, throw back my head and scream...
Broken Crown
Touch my mouth and hold my tongue
I'll never be your chosen one
I'll be home, safe and tucked away
You can't tempt me if I don't see the day
The pull on my flesh was just too strong
It stifled the choice and the air in my lungs
Better not to breathe than to breathe a lie
'Cause when I open my body I breathe a lie
I will not speak of your sin
There was a way out for him
The mirror shows not
Your values are all shot
But oh, my heart was flawed
I knew my weakness
So hold my hand
Consign me not to darkness
So crawl on my belly 'til the sun goes down
I'll never wear your broken crown
I took the road and I fucked it all away
Now in this twilight how dare you speak of grace
So crawl on my belly 'til the sun goes down
I'll never wear your broken crown
I took the road and I fucked it all away
Now in this twilight how dare you speak of grace
So crawl on my belly 'til the sun goes down
I'll never wear your broken crown
I can take the road and I can fuck it all away
But in this twilight our choices seal our fate
This song speaks to me. I've made "bad" choices, I've sinned, my values are all shot... I took the road and I fucked it all away.
Not just the lyrics, but the instrumental is amazing as well. Such an obvious outpouring of hurt and anger...
Thursday, March 14, 2013
Hiding Doesn't Help...
Therapy Round 2 this past Monday. The session itself was pretty mild, the conversations after were a bit more indepth.
Then the 24 hours lag it takes hubby to process set in and it's been a whirl-wind since, to say the least. He's panicing, scrambling, smothering me... He doesn't understand that by doing that he is pushing me further away.
And I've been hurting. My whole body just hurts... and I'm not sure how to tell him I can't take anymore. I am having a really hard time hurting as much on the inside as I do on the outside. It's getting to be overwhelming. I can't make the physical stop or go away... I'm stuck with that for now. But I just want a break from the emotional hurt and pain too. I just want a little time away for myself to just breathe a little, regroup, find my footing again...
But even if I ask for it, I won't get it. I'll have to demand it, take it regardless of hurt feelings and tears, and power through.
This sucks.
And now he's acting like everything is fine. Hiding in plain sight...
Then the 24 hours lag it takes hubby to process set in and it's been a whirl-wind since, to say the least. He's panicing, scrambling, smothering me... He doesn't understand that by doing that he is pushing me further away.
And I've been hurting. My whole body just hurts... and I'm not sure how to tell him I can't take anymore. I am having a really hard time hurting as much on the inside as I do on the outside. It's getting to be overwhelming. I can't make the physical stop or go away... I'm stuck with that for now. But I just want a break from the emotional hurt and pain too. I just want a little time away for myself to just breathe a little, regroup, find my footing again...
But even if I ask for it, I won't get it. I'll have to demand it, take it regardless of hurt feelings and tears, and power through.
This sucks.
And now he's acting like everything is fine. Hiding in plain sight...
Wednesday, March 6, 2013
Interesting Side Effect...
Went to couples therapy Monday night. It was originally meant to be for us to work through our issues and learning to cope with the "new normal" together. But as I was seeing the councellor separately first, it kind of morphed into what can I do to make myself more comfortable, more stress-free, and the topic of me "taking a break" from my family was discussed. I had a breakdown and told hubby all about the things I had been thinking/feeling (wanting to leave, having everything planned out should I "accidentally" parish, not feeling happy, etc) and he was actually excited to go to therapy. I was so uncomfortable the entire time I was there, but I had some very moving moments of opening up about my past relationships - of what has brought me to where I am today.
I had an enormous breakthrough of letting go of past hurts... I have always been very envious of the relationship my mother and sister have, and as long as I can remember, my mother has always said "I don't want to hear it" when I would attempt to be closer to her - to share my life with her on a deeper level. I thought for years it was something I had said or done that caused her to have no interest in a deeper relationship with me. It wasn't until this therapy session that I realized it's not because she doesn't love me - it's because she loves me so much that when I share hard times and pain, it is just too intense for her. I can empathize with that completely. Its her defense mechanism that I had been misunderstanding as lack of interest/lack of caring. I felt a great sense of relief, a weight lifted from me when it finally dawned on me.
The rest of the session wasn't quite so warm and fuzzy (not that the previous realization was what I would call warm and fuzzy to begin with)... Hubby admitted he knew I wasn't happy, that he doesn't think I've ever really been "happy," nor does he really believe I'm capable. That was hard to hear, but mostly because it's true. We talked about how I internalize EVERYTHING and never really let things out. It was good to have that acknowledged.
But the strangest thing happend on the way home. I started to hurt... All over. And intense ache through every tissue in my body. I suspect I've not only been internalizing my mental pain, but my physical as well. I was not prepared for such a flood of physical pain. I am NOT a fan of that... If opening up and being a better person means being in chronic pain all the time, I'll take being an introverted hag over the alternative any day...
I had an enormous breakthrough of letting go of past hurts... I have always been very envious of the relationship my mother and sister have, and as long as I can remember, my mother has always said "I don't want to hear it" when I would attempt to be closer to her - to share my life with her on a deeper level. I thought for years it was something I had said or done that caused her to have no interest in a deeper relationship with me. It wasn't until this therapy session that I realized it's not because she doesn't love me - it's because she loves me so much that when I share hard times and pain, it is just too intense for her. I can empathize with that completely. Its her defense mechanism that I had been misunderstanding as lack of interest/lack of caring. I felt a great sense of relief, a weight lifted from me when it finally dawned on me.
The rest of the session wasn't quite so warm and fuzzy (not that the previous realization was what I would call warm and fuzzy to begin with)... Hubby admitted he knew I wasn't happy, that he doesn't think I've ever really been "happy," nor does he really believe I'm capable. That was hard to hear, but mostly because it's true. We talked about how I internalize EVERYTHING and never really let things out. It was good to have that acknowledged.
But the strangest thing happend on the way home. I started to hurt... All over. And intense ache through every tissue in my body. I suspect I've not only been internalizing my mental pain, but my physical as well. I was not prepared for such a flood of physical pain. I am NOT a fan of that... If opening up and being a better person means being in chronic pain all the time, I'll take being an introverted hag over the alternative any day...
Sunday, February 24, 2013
Feeling a Little Lost
Depression has not been my friend lately. Yesterday I spent 80% of the day in bed. Not moving, just sleeping or crying or just laying there, staring off into space.
It was a bad pain day, both physically and emotionally.
My daughter was inquiring if the dogs are going to die. Hubby handled it pretty well, telling her that yes, someday they will... That dogs just don't live as long as people do. She cried. I wasnt even there, and it completely triggered a shut down for me... I'm not going to live as long either. How am I supposed to explain to my children, my babies, that I'm not likely to see them have children of their own? I know anyone can go at anytime... I know that no one knows how long they have. But I'm also tired of living in limbo. I'm not "happy" and haven't been for a long time.
We start couples therapy next week. I'm excited and soooooooooooo nervous. Tools for coping...
It was a bad pain day, both physically and emotionally.
My daughter was inquiring if the dogs are going to die. Hubby handled it pretty well, telling her that yes, someday they will... That dogs just don't live as long as people do. She cried. I wasnt even there, and it completely triggered a shut down for me... I'm not going to live as long either. How am I supposed to explain to my children, my babies, that I'm not likely to see them have children of their own? I know anyone can go at anytime... I know that no one knows how long they have. But I'm also tired of living in limbo. I'm not "happy" and haven't been for a long time.
We start couples therapy next week. I'm excited and soooooooooooo nervous. Tools for coping...
Saturday, February 2, 2013
Taking a Step Back
My last couple posts have seemed pretty bleak, which is appropriate, as I have been feeling that way lately. I have had more going on then just my body falling apart. My family life is a little shakey right now too. I've been trying to vocalize my needs, and I am simply not being heard. Or I'm being heard, and then deliberately ignored - which in my opinion is so much worse. I mentioned couples therapy to the hubby and he was confused. "Why would we need that?" Oh I don't know, so that you hear and maybe acknowledge what I say? So that we can BOTH be armed with tools for coping with the "new normal?" So that we can figure out a game plan for moving forward?
In response to me leaving and spending the night at my parents the other night (again, I was not being heard or deliberately ignored) he booked a long weekend where we spent our honeymoon... A thoughtful gesture, only we are also bringing the kids, and quite frankly we don't have the money to GO on vacation right now. So not only will it not be relaxing, as I'll still have to be Mommy and watch my kids like a hawk at a water park (they can't swim yet, so my anxiety will be through the roof - plus my instability in the water is pretty bad - all my braces have to come off) but then I'll have to worry about how this is going to effect our finances for the next couple months too.
His mother brought up that she heard we were going on vacation, and that she was excited about it. I told her I wasn't so sure about it, and she looked shocked. She rattled off the list of all the fun things there are to do and I just clinched my teeth and said "You're absolutely right, Hubby and the kids are going to have a great time." She sighed heavily and said "You know Mer, sometimes you just have to go along for the ride." I got so angry, I practically shouted "No, sometimes I have to be the only fucking fiscally responsible adult in the house and it is utterly exhausting. If we can't afford to go to Disney in the spring with the rest of you guys, we can't afford to go on a long vacation anywhere else either! Maybe I can schedule to have our heat and electricity shut off while we're out of town, since they are about to do it anyways..." She just looked at me like I had slapped her (well, I verbally did I guess) and my sister-in-law chimed in that it was time for a topic change as the tension in the room had gone through the roof. I said I was sorry and just looked at the ground.
I am ALWAYS the bad guy.
My father-in-law quietly said after "you know, I agree with you." It was a little validating to have someone on my side, but it was also so uncomfortable being there after my little outburst. I left shortly after.
Running away on a mini vacation is not going to make "this" go away, nor is it going to make it any easier for me. And undoubtedly, Hubby will set some deadline that the house has to be "completely clean" before we go anywhere, adding additional stress to what is supposed to be a fun thing. But since I'm the one saying this is a bad idea, or that we should think about rescheduling or something, I'M THE BAD GUY.
I'm not the bad guy, I'm the adult in this situation. In every situation.
I really need to take a huge step back from my life and really take a hard look at what is adding ridiculous stress to my life. If it's something I can change, I'll change it. If it's something that is unwilling to compromise or listen, maybe its time to let it go. Something has got to give, and I'm just tired of feeling like the only one who is bending/breaking.
In response to me leaving and spending the night at my parents the other night (again, I was not being heard or deliberately ignored) he booked a long weekend where we spent our honeymoon... A thoughtful gesture, only we are also bringing the kids, and quite frankly we don't have the money to GO on vacation right now. So not only will it not be relaxing, as I'll still have to be Mommy and watch my kids like a hawk at a water park (they can't swim yet, so my anxiety will be through the roof - plus my instability in the water is pretty bad - all my braces have to come off) but then I'll have to worry about how this is going to effect our finances for the next couple months too.
His mother brought up that she heard we were going on vacation, and that she was excited about it. I told her I wasn't so sure about it, and she looked shocked. She rattled off the list of all the fun things there are to do and I just clinched my teeth and said "You're absolutely right, Hubby and the kids are going to have a great time." She sighed heavily and said "You know Mer, sometimes you just have to go along for the ride." I got so angry, I practically shouted "No, sometimes I have to be the only fucking fiscally responsible adult in the house and it is utterly exhausting. If we can't afford to go to Disney in the spring with the rest of you guys, we can't afford to go on a long vacation anywhere else either! Maybe I can schedule to have our heat and electricity shut off while we're out of town, since they are about to do it anyways..." She just looked at me like I had slapped her (well, I verbally did I guess) and my sister-in-law chimed in that it was time for a topic change as the tension in the room had gone through the roof. I said I was sorry and just looked at the ground.
I am ALWAYS the bad guy.
My father-in-law quietly said after "you know, I agree with you." It was a little validating to have someone on my side, but it was also so uncomfortable being there after my little outburst. I left shortly after.
Running away on a mini vacation is not going to make "this" go away, nor is it going to make it any easier for me. And undoubtedly, Hubby will set some deadline that the house has to be "completely clean" before we go anywhere, adding additional stress to what is supposed to be a fun thing. But since I'm the one saying this is a bad idea, or that we should think about rescheduling or something, I'M THE BAD GUY.
I'm not the bad guy, I'm the adult in this situation. In every situation.
I really need to take a huge step back from my life and really take a hard look at what is adding ridiculous stress to my life. If it's something I can change, I'll change it. If it's something that is unwilling to compromise or listen, maybe its time to let it go. Something has got to give, and I'm just tired of feeling like the only one who is bending/breaking.
Monday, January 28, 2013
Pity Party, Table for One Please
I used to be passionate about 4 main things in life:
1) Eating tasty food
2) Massage (giving, not receiving)
3) Sex
4) Horses
As of today, I can manage only 1/2 of one of those 4 things. Last night I dislocated my jaw. I won't get into specifics, as this isn't that kind of blog, but yeah, jaw is a wreck today because of it. If I wasn't feeling lost before, well I definitely am now!! I was once a very sexual being - I like sex (who doesn't???) and I used to be really good at it. Now I just feel broken and useless. My "usefulness" as a woman is being stripped from me, and that is heart breaking. I have been told not to have any more children for fear of either myself or the child not making it out unscathed (or alive) in the end... To have that taken away was a very hard blow. But now, to have the fun part taken away piece by piece too??
Is this a lesson, God? Are you trying to teach me to let go of control? Am I supposed to be like Job and lose everything I have and am to prove my faithfulness to you?? Or is this something else? A not so gentle shove in my life path of which direction I am supposed to go? If that's the case, Lord, could you take the blinders off first so I can see where I'm headed, as right now it just feels like I'm being shoved off a cliff...
1) Eating tasty food
2) Massage (giving, not receiving)
3) Sex
4) Horses
As of today, I can manage only 1/2 of one of those 4 things. Last night I dislocated my jaw. I won't get into specifics, as this isn't that kind of blog, but yeah, jaw is a wreck today because of it. If I wasn't feeling lost before, well I definitely am now!! I was once a very sexual being - I like sex (who doesn't???) and I used to be really good at it. Now I just feel broken and useless. My "usefulness" as a woman is being stripped from me, and that is heart breaking. I have been told not to have any more children for fear of either myself or the child not making it out unscathed (or alive) in the end... To have that taken away was a very hard blow. But now, to have the fun part taken away piece by piece too??
Is this a lesson, God? Are you trying to teach me to let go of control? Am I supposed to be like Job and lose everything I have and am to prove my faithfulness to you?? Or is this something else? A not so gentle shove in my life path of which direction I am supposed to go? If that's the case, Lord, could you take the blinders off first so I can see where I'm headed, as right now it just feels like I'm being shoved off a cliff...
Labels:
depression,
disappointment,
dislocation,
EDS,
jaw,
JIS,
pain,
scared,
sloppy joints,
strain,
tear,
tired,
when things go POP
Saturday, January 26, 2013
Asking For Help
I've never been very good at asking for help. Ever. It's just not something I'm comfortable with - which I know is just one of those ridiculous mental flaws that I have.
But now that I literally am having a hard time doing what used to be normal everyday activities, I'm finding that I can't do things alone. As much as I think I should be able to...
So today I am single parent as hubby is off in California for the weekend being a good sport. Long story - not worth explaining. It just so happens that I have just about zero food in the house and need to head to the grocery store. With both kids in tow. AND I'm having a wicked pain day today after washing ALL the dishes yesterday by myself. So I asked a buddy yesterday if he could help today. Yeah, sure, no problem. Well turns out today that he is spending the day with the new girlfriend, so he won't be available to help until after 5pm. I was hoping to be starting dinner by then... So I told him no worries, I'll ask around.
Asked newest buddy and she is repainting a room in her house today, so she won't be available. Wanted to ask super bestie, but she just got home from a work trip herself and it was her first time away from her little baby. I don't want to intrude and bug her - especially because I think she might be at work today anyways.
Now I know beggers can't be choosers, so if I want someone to help me, I really need to be flexible to their schedules. Only... it's not just me - I have my little peoples schedules to tap dance around too.
I just hate feeling rejected when I already feel low. I know it's not intentional, but yeah... This is why I don't ask for help. The rare times I do ask I try to ask in advance, then when the person I was counting on bails, I'm screwed trying to find a replacement last minute. And then I end up having to take care of shit by myself anyways. So why bother asking in the first place?
Maybe I'll call my dad. See if he can at least meet me at the house after I get home to help bring the groceries in. Or my brother...
(sigh)
But now that I literally am having a hard time doing what used to be normal everyday activities, I'm finding that I can't do things alone. As much as I think I should be able to...
So today I am single parent as hubby is off in California for the weekend being a good sport. Long story - not worth explaining. It just so happens that I have just about zero food in the house and need to head to the grocery store. With both kids in tow. AND I'm having a wicked pain day today after washing ALL the dishes yesterday by myself. So I asked a buddy yesterday if he could help today. Yeah, sure, no problem. Well turns out today that he is spending the day with the new girlfriend, so he won't be available to help until after 5pm. I was hoping to be starting dinner by then... So I told him no worries, I'll ask around.
Asked newest buddy and she is repainting a room in her house today, so she won't be available. Wanted to ask super bestie, but she just got home from a work trip herself and it was her first time away from her little baby. I don't want to intrude and bug her - especially because I think she might be at work today anyways.
Now I know beggers can't be choosers, so if I want someone to help me, I really need to be flexible to their schedules. Only... it's not just me - I have my little peoples schedules to tap dance around too.
I just hate feeling rejected when I already feel low. I know it's not intentional, but yeah... This is why I don't ask for help. The rare times I do ask I try to ask in advance, then when the person I was counting on bails, I'm screwed trying to find a replacement last minute. And then I end up having to take care of shit by myself anyways. So why bother asking in the first place?
Maybe I'll call my dad. See if he can at least meet me at the house after I get home to help bring the groceries in. Or my brother...
(sigh)
Monday, January 21, 2013
I Think I Need Help
Today has been really hard. Every once in a while I'll get smacked with the idea that what I am going through isn't going away. It isn't going to "get all better." THIS is how my life is going to be.
How the hell am I supposed to cope with "this?" Granted, "this" isn't exactly new. I've been dealing with "this" nearly my whole life. But it just seems that "this" has gotten SOOO much worse in the past year. I mean really - who the hell dislocates their hand/forearm taking towels out of the drier? Who the hell tears muscle by simply being, or sneezing? Me. I do. And it's only going to get worse???
Today's depression tailspin is brought to you by a former massage client of mine. I haven't seen her in a year, and she came into the office today looking for me. She wanted to book a massage with me, and book one for her daughter and I had to inform her of my change in career.
Broke my fucking heart.
What's worse? SHE burst into tears and lamented that she could never go to another therapist - that she didn't want anyone else. God damn that was painful to hear. Amazingly validating that I did good work as a massage therapist, stab in my heart that "this" took it away from me.
I mentioned my blah-dom to my physical therapist and she gave me the name and number to her psychologist and the therapist that she sees. She strongly recommended I call them. She said that she probably understands better than anyone what this chronic illness/syndrome can do to ones mental state, and she really wants me to call them and see them before I really start to get antsy. I think I'll take her up on it.
Somethings gotta give. :-/
How the hell am I supposed to cope with "this?" Granted, "this" isn't exactly new. I've been dealing with "this" nearly my whole life. But it just seems that "this" has gotten SOOO much worse in the past year. I mean really - who the hell dislocates their hand/forearm taking towels out of the drier? Who the hell tears muscle by simply being, or sneezing? Me. I do. And it's only going to get worse???
Today's depression tailspin is brought to you by a former massage client of mine. I haven't seen her in a year, and she came into the office today looking for me. She wanted to book a massage with me, and book one for her daughter and I had to inform her of my change in career.
Broke my fucking heart.
What's worse? SHE burst into tears and lamented that she could never go to another therapist - that she didn't want anyone else. God damn that was painful to hear. Amazingly validating that I did good work as a massage therapist, stab in my heart that "this" took it away from me.
I mentioned my blah-dom to my physical therapist and she gave me the name and number to her psychologist and the therapist that she sees. She strongly recommended I call them. She said that she probably understands better than anyone what this chronic illness/syndrome can do to ones mental state, and she really wants me to call them and see them before I really start to get antsy. I think I'll take her up on it.
Somethings gotta give. :-/
Friday, January 18, 2013
Getting Something Together... Pantry (pt 1)
I've been feeling exceptionally depressed lately, so I haven't had much to say. But this morning I got it in my head that I would make a dent in the pantry so I can make a dent in the kitchen.
First item I felt like tackling was all of our spices.
We had a MILLION it seems, and I had an ancient spice rack in the back of the pantry, bottom shelf - completely inconvenient to get to and annoying. Well, no more. I pulled *most* of my spice and herb bottles out and gave them a good once over: what is still good, which are 7 years old...
So I'm sure you're wondering... "Did she really only have 11 herbs/spices that were salvageable out of 35?? Really??" The short answer is: No, that is not quite the case.
I know it's not as tidy as something you'd find on pinterest... but that is exactly where I got the idea from. Should I have measured out my lines first? Yeah, probably... but it's not like I won't ever be able to move things around should I wish. And that new label maker I just bought? I think it just earned it's keep. :) Everything is labeled so nicely!!
***EDIT***
Ok, the lack of uniformity was pissing me off. And my husband managed to take one off and spill cajun seasoning all over the world, apparently... So I reapplied the magnetic tape and tacked it into place with brad nails. That puppy isn't going ANYWHERE. And it looks amazingly neater:
First item I felt like tackling was all of our spices.
We had a MILLION it seems, and I had an ancient spice rack in the back of the pantry, bottom shelf - completely inconvenient to get to and annoying. Well, no more. I pulled *most* of my spice and herb bottles out and gave them a good once over: what is still good, which are 7 years old...
Here's a pic of all the bottles I pulled out of the pantry:
That's 35 bottles!! 35 bottles that were being under utilized, ignored, or otherwise just taking up space. And kindly ignore the basket of laundry... I'm working on getting that all straightened up too. Another post on that some other time...
Here are the bottles that are going back into the pantry:
11 containers going back into the pantry. That's IT.
So here are the containers that are NOT going back into the pantry:
So I'm sure you're wondering... "Did she really only have 11 herbs/spices that were salvageable out of 35?? Really??" The short answer is: No, that is not quite the case.
So where did all of my herbs and spices go? Why, on the walls, of course!
The 5 spices I use most often are over by the stove for convenience, tho if I plan on making something, I can swap out for whatever the recipe calls for, and put my "ol' faithfuls" back with their friends.
Here's the other 20 herbs/spices that I had in the cabinet that were still good. But now they are in cute little tins that I bought at Michael's on sale (tin wedding favors) and some magnetic tape. Viola!!
I know it's not as tidy as something you'd find on pinterest... but that is exactly where I got the idea from. Should I have measured out my lines first? Yeah, probably... but it's not like I won't ever be able to move things around should I wish. And that new label maker I just bought? I think it just earned it's keep. :) Everything is labeled so nicely!!
***EDIT***
Ok, the lack of uniformity was pissing me off. And my husband managed to take one off and spill cajun seasoning all over the world, apparently... So I reapplied the magnetic tape and tacked it into place with brad nails. That puppy isn't going ANYWHERE. And it looks amazingly neater:
OMG, MUCH better!!
Monday, January 7, 2013
Ka-CHOO!
One of my kids favorite Dr Seuss books is All Because A Little Bug Went Ka-Choo. Its a whimsical story about how a tiny little bug sneezed and ultimately sets off a Rube Goldberg of catastrophe in a nearby city. One of the last pages shows a parade and a circus colliding downtown, animals and instruments everywhere. This usually illicits hysterics from the small boy - he does love silliness.
What does this have to do with anything?
Well, yesterday I went to Michael's with the fam to pick up a family craft for the afternoon. As we were checking out, I sneezed. Ka-Choo! It wasn't a very big sneeze, in fact, quite puny on the sneeze scale - but here's the thing. I hold my sneezes in. I've been told for years I'm going to hurt myself doing that.
They were right.
During said sneeze, I felt a pop... in my abdomen. My PT checked it out this morning and thinks I may have just ripped my diastasis more, but she wants me to get it checked out. So I'm going in to see my PCP this afternoon to have her mash on my tummy, to make sure I haven't created a new hernia (I already have a small umbilical hernia). From there she will be able to make a recommendation where to go next.
It REALLY hurt after I did it. To the point it doubled me over in line... and I couldn't get upright right away. I've had lingering pain that spikes when I sit up, or engage my abdominals. I also have this lingering feeling of "gotta pee" in my lower abdomen, so I may have just strained one of the ligaments that supports my bladder. I've had no issues with urination, or holding my urine, so that is fabulous! Just one more weird thing to tack on the list of bizarre-o happenings that my rheum claims is unrelated.
We shall see what the PCP says.
Fingers crossed for a strain and no more surgery!!
What does this have to do with anything?
Well, yesterday I went to Michael's with the fam to pick up a family craft for the afternoon. As we were checking out, I sneezed. Ka-Choo! It wasn't a very big sneeze, in fact, quite puny on the sneeze scale - but here's the thing. I hold my sneezes in. I've been told for years I'm going to hurt myself doing that.
They were right.
During said sneeze, I felt a pop... in my abdomen. My PT checked it out this morning and thinks I may have just ripped my diastasis more, but she wants me to get it checked out. So I'm going in to see my PCP this afternoon to have her mash on my tummy, to make sure I haven't created a new hernia (I already have a small umbilical hernia). From there she will be able to make a recommendation where to go next.
It REALLY hurt after I did it. To the point it doubled me over in line... and I couldn't get upright right away. I've had lingering pain that spikes when I sit up, or engage my abdominals. I also have this lingering feeling of "gotta pee" in my lower abdomen, so I may have just strained one of the ligaments that supports my bladder. I've had no issues with urination, or holding my urine, so that is fabulous! Just one more weird thing to tack on the list of bizarre-o happenings that my rheum claims is unrelated.
We shall see what the PCP says.
Fingers crossed for a strain and no more surgery!!
Thursday, December 27, 2012
Wait... Disabled?? Who's Disabled??
While I was at physical therapy yesterday, I mentioned to my PT that I drive with one hand. Having only one hand that is completely attached at this point will usually do that. She asked how I steered, and I demonstrated how I do a flat palm "Dukes of Hazzard" spin around the wheel. She shook her head and pointed out how this may not be the safest way of steering my car - and she's right, one slip and I have no contact on the steering wheel. Danger, Will Robinson! Danger! Tho more likely... Lawsuit, Will Robinson! Lawsuit! So she made the suggestion of getting a steering wheel knob that I can grasp with the good hand and properly maneuver my vehicle.
"And did you get the device from Bed Bath and Beyond yet that helps you open jars?" Oh yeah, I need to pick one of those up too.
So I started looking online for proper steering wheel knobs and other "assisted living devices."
And it hit me.
Like a Mack truck.
I am disabled.
This isn't going away. None of it. The rest of my life will be spent within varying forms of disability. I was always embarrassed or ashamed after a dislocation when I was younger, but the light at the end of the tunnel was that I would grow out of it. That I would have the massive reconstruction to my knees and the pain, embarrassment, and shame would go away with it.
But it didn't.
Now before anyone attacks me for being embarrassed or ashamed of my disabilities, please keep in mind that I am not embarrassed or ashamed of others who have disabilities. Not one bit.
When I was younger, I would get teased for constantly being in and out of an immobilizer for my knees. Kids can be pretty cruel, and I tried pretty damn hard to fade into the background, to fly under the radar of the "popular kids" who had previously caused so much emotional harm. Having an "invisible" affliction is HARD. People can't SEE what's wrong with you, so they either have to ask, or just make assumptions and judge. I don't look sick.
The finger splints help as a visual marker to others that something is different. Most people assume they are jewelry, but are always amazed when they ask where I got them. I haven't had a single cruel comment about them yet. But I'm bracing for it. That scared, hurt little kid in me can't help but brace for a rock that might be coming.
I know I'm rambling, and jumping around. But when learning what the "new normal" is, it can be a bumpy road. Getting out my fears, concerns, sadness, and upset/anger are all part of the grieving process of losing the "old normal" (which oddly enough wasn't all that "normal" to begin with - but I wanted it to be). It isn't easy to admit that things are different... and aren't going back to the way they were before, no matter how badly I want them to.
My PT also recommended that I seek out a counselor to talk to. She said that coping with an invisible illness can be very stressful, especially when half of the medical community will tell you it's all in your head. I may heed her advice and look into it. I'm not very good at coping. Not by myself anyways.
In other news, saw the rheum of doom this morning. He refilled my script for more PT, and prescribed a mild antidepressant in an attempt to get my sleep pattern back on track. I am cautiously optimistic that it will help me sleep better at night. The kids also picked out a memory foam mattress topper for hubby for Christmas. We put it on last night and I woke up with the least amount of pain in my hips in months. Yay. Fingers crossed the combo of new meds and new comfort in bed will be the right cocktail for more restful sleep. See? Positive outlook at the end, in spite of myself. ;)
"And did you get the device from Bed Bath and Beyond yet that helps you open jars?" Oh yeah, I need to pick one of those up too.
So I started looking online for proper steering wheel knobs and other "assisted living devices."
And it hit me.
Like a Mack truck.
I am disabled.
This isn't going away. None of it. The rest of my life will be spent within varying forms of disability. I was always embarrassed or ashamed after a dislocation when I was younger, but the light at the end of the tunnel was that I would grow out of it. That I would have the massive reconstruction to my knees and the pain, embarrassment, and shame would go away with it.
But it didn't.
Now before anyone attacks me for being embarrassed or ashamed of my disabilities, please keep in mind that I am not embarrassed or ashamed of others who have disabilities. Not one bit.
When I was younger, I would get teased for constantly being in and out of an immobilizer for my knees. Kids can be pretty cruel, and I tried pretty damn hard to fade into the background, to fly under the radar of the "popular kids" who had previously caused so much emotional harm. Having an "invisible" affliction is HARD. People can't SEE what's wrong with you, so they either have to ask, or just make assumptions and judge. I don't look sick.
The finger splints help as a visual marker to others that something is different. Most people assume they are jewelry, but are always amazed when they ask where I got them. I haven't had a single cruel comment about them yet. But I'm bracing for it. That scared, hurt little kid in me can't help but brace for a rock that might be coming.
I know I'm rambling, and jumping around. But when learning what the "new normal" is, it can be a bumpy road. Getting out my fears, concerns, sadness, and upset/anger are all part of the grieving process of losing the "old normal" (which oddly enough wasn't all that "normal" to begin with - but I wanted it to be). It isn't easy to admit that things are different... and aren't going back to the way they were before, no matter how badly I want them to.
My PT also recommended that I seek out a counselor to talk to. She said that coping with an invisible illness can be very stressful, especially when half of the medical community will tell you it's all in your head. I may heed her advice and look into it. I'm not very good at coping. Not by myself anyways.
In other news, saw the rheum of doom this morning. He refilled my script for more PT, and prescribed a mild antidepressant in an attempt to get my sleep pattern back on track. I am cautiously optimistic that it will help me sleep better at night. The kids also picked out a memory foam mattress topper for hubby for Christmas. We put it on last night and I woke up with the least amount of pain in my hips in months. Yay. Fingers crossed the combo of new meds and new comfort in bed will be the right cocktail for more restful sleep. See? Positive outlook at the end, in spite of myself. ;)
Wednesday, November 28, 2012
Feeling A Little Defeated
I've been working really hard at both OT and PT the past 2 weeks. I'm tired, I'm sore all over, and I just feel blah. Yesterday was my designated stay at home with the kids day, and I just wanted to cry 75% of the day. It was SO HARD. I was just so tired... and my hands and wrists are just so shot, I couldn't wrangle the kiddo's like I used to. Previously simple tasks I took for granted are now next to impossible... Picking up my little boy, snapping him in his car seat, pushing a shopping cart...
I knew things were going to be different, that I was going to have to get used to the "new normal." I lost one career, the second is hanging in the balance. If I lose my identity as a parent too I'm not sure what will be left of me...
Keeping it together... barely.
In other news, still no word on my silver ring splints. The OT's suspect that the delivery may have been delayed due to the holiday. Fingers still crossed they arrive before Christmas... Silver lining indeed!
Edit:
Of course as I'm feeling all mopey, I pop on facebook and am greeted by this:
I knew things were going to be different, that I was going to have to get used to the "new normal." I lost one career, the second is hanging in the balance. If I lose my identity as a parent too I'm not sure what will be left of me...
Keeping it together... barely.
In other news, still no word on my silver ring splints. The OT's suspect that the delivery may have been delayed due to the holiday. Fingers still crossed they arrive before Christmas... Silver lining indeed!
Edit:
Of course as I'm feeling all mopey, I pop on facebook and am greeted by this:
Point taken, universe. Point taken... ;-)
Monday, October 15, 2012
Falling Apart... Again
Todays therapy did not go well. Tendon is subluxing again which would lead one to believe the internal tissues that the synthetic tendon sheath were adheared to are too unstable to hold. The wrist is crunching again and I'm trying so hard not to fall apart emotionally too.
I'm disappointed.
I'm in pain.
I don't understand what the hell is happening to me.
To top it off? My right wrist is starting to hurt too. I'm feeling useless and broken. I haven't been really helping out at home. Granted, I'm technically not supposed to... but I've been sticking to it as I'm physically unable.
I'm getting frustrated with being in pain all the time. Its starting to affect my relationships with people. I'm typically a very quiet person when it comes to my personal life. At times, getting me to open up and share is like pulling teeth. But lately, I feel myself withdrawing from everyone. I guess I'm tired of people asking "how's the hand?" and me not having anything positive to say. When people ask, they don't want to hear anything other than "things are going great!" I admitted things were not going well to a patient at work the other day and the look of pity she gave me...
I don't want anyone to pity this shit I've been dealt. I do that enough for myself, thank you very much.
Tonight is a rough night for Keeping It Together...
I'm disappointed.
I'm in pain.
I don't understand what the hell is happening to me.
To top it off? My right wrist is starting to hurt too. I'm feeling useless and broken. I haven't been really helping out at home. Granted, I'm technically not supposed to... but I've been sticking to it as I'm physically unable.
I'm getting frustrated with being in pain all the time. Its starting to affect my relationships with people. I'm typically a very quiet person when it comes to my personal life. At times, getting me to open up and share is like pulling teeth. But lately, I feel myself withdrawing from everyone. I guess I'm tired of people asking "how's the hand?" and me not having anything positive to say. When people ask, they don't want to hear anything other than "things are going great!" I admitted things were not going well to a patient at work the other day and the look of pity she gave me...
I don't want anyone to pity this shit I've been dealt. I do that enough for myself, thank you very much.
Tonight is a rough night for Keeping It Together...
Labels:
depression,
disappointment,
dislocation,
fibromyalgia,
frustrated,
JIS,
joint instability syndrome,
lupus,
occupational therapy,
one handed antics,
pain,
relapse,
sloppy joints,
support,
surgery,
tired
Saturday, October 13, 2012
Pushed Too Hard?
Had my 5th session of OT on friday. It did not go well. I had pushed myself pretty hard the day before with my home exercises and was pretty sore. Get into OT and my wrist was very stiff and swollen. The therapist starts to do a gentle stretch and...
*POP*
We both froze. I looked at her. She looked at me. Neither of use moved a muscle for a good 3 hard seconds. I swollowed. Hard. It started to hurt. She backed off the therapy for the day and taped my wrist. Told me to take a break from home exercise and just rest my hand/wrist the rest of the weekend.
"The tendon slipping has me concerned... I'm hoping that doesnt happen again."
Me too, lady. Me too.
I'm too depressed to say much else today. It was a bad pain day.
*POP*
We both froze. I looked at her. She looked at me. Neither of use moved a muscle for a good 3 hard seconds. I swollowed. Hard. It started to hurt. She backed off the therapy for the day and taped my wrist. Told me to take a break from home exercise and just rest my hand/wrist the rest of the weekend.
"The tendon slipping has me concerned... I'm hoping that doesnt happen again."
Me too, lady. Me too.
I'm too depressed to say much else today. It was a bad pain day.
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